On February 1st 2017 our world was quickly interrupted by some terrible news that we received from Brink’s cardiologist. After numerous tests and being in the hospital for the second time, doctors were finally able to locate the issue. Our cardiologist called us at around 8pm and asked if we would sit down. She told us that Brink had a rare Heart condition called “Alcapa” which stands for Anomalous origin of the left coronary artery from the pulmonary artery. The name makes it sound confusing but basically the left coronary artery originates from the pulmonary artery instead from the aorta. This causes the blood to be poorly oxygenated and over a short period of time, this causes tissue death and even a heart attack. Most Alcapa cases are found within the first 2-4 months of life and 90% of babies with Alcapa don’t make it to their first birthday.
Praise God for our Doctors who got to the bottom of Brink’s case. We immediately saw God’s hand along each step of this journey. He provided us with the best surgeon in one of the most specialized Children’s Hospitals there is. While we could see God’s provision and the path He clearly laid out for us, there was still a gut wrenching feeling that would come over me every time I thought about sending Brink off to surgery. It’s hard to explain but I can tell you that every thought and every moment leading up to surgery consumed me. Even down to the details of what room we would be waiting in while he was in surgery, this was a hard experience for me. I constantly had people texting me and commenting on my Instagram telling me what a strong mom I was but I didn’t feel like that at all. I cried a lot, I prayed constantly and asked God to please let me have him for longer. I feel selfish even saying that, there are so many parents who are in much worse positions than we were, who don’t have the option of a surgery that will fix their child’s disease or worse bring them back to life. I remember praying after we left Brink to go to the O.R “God if he doesn’t make it, please make me stronger to be able to cope because I don’t have it in me” While he was in surgery every minute felt like ten. Our family were with us every step of the way, we had unbelievable support from all over the world praying for Brink, fasting during his surgery, sending us texts, and gifting us with money to sustain us while we were in the hospital. The amount of support we have been shown was completely humbling.
“How Great Thou Art”, that’s the song the pianist was playing in the lobby after we received the amazing news of the successful surgery. This song was truly the anthem of this whole journey. And I did not get to see this in person because I was literally next to Brink every minute, it was impossible for me to leave him. Like I said, this was a very hard process for me. As my family left for lunch after a long morning, they walked through the lobby and a woman sat at the piano playing that song. My husband turned back and she was gone, that was her last song of the day. I think God had her play it just for them, I love how He cares for us in all the details.
Brink is thriving today; sure, his heart isn’t perfect given the damage that was done but we were out of the hospital 2-3 weeks sooner than expected. Yes, terrible things happen on this earth, much worse than what we have experienced but I truly experienced God’s grace on a whole new level. The way He took care of us was amazing, each decision we were not alone. I can’t tell you what kind of person I would be had I lost Brink, I hope that I would be strong but I can’t say for sure. Brink’s story isn’t finished; I believe he has a very bright and healthy future. I pray for him every day, and I know God cares for him and is still at work fine tuning that little heart.